Safety Parade Helps Girl with Rare Muscle Disease

<p>Lacey Scott</p>

Lacey Scott

Walla Walla Fire District #5 is hosting it's 25th Annual Safety Parade in Burbank tomorrow.

This year firefighters are making the event all about a 9-year-old girl suffering from a rare muscle disease.

Lacey Scott always felt like a normal kid but things started to change about 18 months ago.

Going outside in the sun now causes her to be in pain and playing with her friends leaves her exhausted.

"I got tired a lot and when I went outside I would turn red and I just wanted to go inside," said Lacey.  "I started getting tired and falling a lot."

Lacey was diagnosed with a rare muscle disease called juvenile dermatomyositis.

She also has rheumatoid arthritis and osteoporosis

"It makes me tired and my muscles get weak," said Lacey.

Local members of the community reached out to the fire department to turn tomorrow's Safety Parade into a fundraiser for Lacey and the firefighters welcomed the idea with open arms.

"The fire department said oh we want to help this little girl so from there it shot off to something bigger than we had planned," said Casey Kasselder, a MDA ambassador. 

Lacey will be the Grand Marshall for the parade and the event that follows.

There will be food, games, prizes and demonstrations by firefighters.

Lacey also made braclets for the event.

100% of the procedes will go to Lacey's family.

"I'm really excited," said Lacey. "I'm just glad I get to go outside and I get to do what I love to do, just look outside and watch the clouds."